Our Inspiration

Flunk Cancer was created by the family and friends of Shannon McHone, a 2007 graduate of the University of North Carolina at Wilmington. Two year after earning her degree in Elementary Education she was diagnosed with Brain Cancer and, after a valiant 9 year battle, she passed away in April, 2019 leaving behind an army of supportive students, teachers, families and friends. Throughout her journey Shannon made sure that, while a part of her life, cancer would not reduce the quality of life and love that she was able to give and receive. Her legacy of learning and love for teaching continues through Flunk Cancer. Read Shannon’s Story here:

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This past weekend we were able to host our first annual Flunk Cancer 5K. With just over 200 participants both in-person and virtually, we are overwhelmed by the amount of support we received for our first 5K.


Due to the absence of a medal ceremony as a result of COVID-19, we want to offer a congratulations to this weekend’s winners:


Men’s Overall – Luke Ward, 16:38

Women’s Overall – Molly Parker, 18:50

1 Mile Run – Emory and Brinley Schilawski, 9:48


We also want to give a huge thank you to our sponsors for supporting our cause and making the day such a success.


Diamond Level Sponsor:


Gold Level Sponsor:

Learning Bridge Development Center

Island Gazette


Omega Sports



The weekend wouldn’t have been possible without the diligence and enthusiasm of our Race Coordinator, Claire Quick. Claire and Shannon met while teaching at Sunset Park Elementary School in Wilmington, NC, just beside where the race took place this weekend. Overall the Sunset Park Community is where Shannon found her “home away from home,” dubbing themselves “Shannon’s Sharks” and supporting her throughout her journey. Since teaching at Sunset Park, Claire has started the Learning Bridge Development Center, which aims to bring education to life for infants-pre-K. We are sure that you could see her teacher touch on the race as she handmade the name tags on each race packet. She is also a mother of 2 and an avid runner. We are so grateful to her support over the years of both Shannon and Flunk Cancer. Thank you, Claire, for your hard work throughout the year and making this weekend such a success!


Claire (left), Shannon (middle), Kristina (right)


We also wanted to recognize our race partner, Go Time, for their incredible help in organizing this event. When planning began in the spring, we were uncertain if this event would even be possible due to Coronavirus. Go Time instilled social distancing measures at the start time, coordinated with the city, encouraged social distancing throughout the event, provided single-use masks for runners at the start line, and took the temperature of each participant. Without Go Time, we would have been lost in planning this inaugural 5K during such a crazy time. They really went the extra mile (pun intended) in ensuring our race was successful and safe.


Team Forza Leo


Finally, we were so grateful and humbled to be able to recognize Neah Farr and her son Leo with the first Flunk Cancer Giving Grant. As a teacher, Neah is a true embodiment of selflessness and light. On Saturday, Leo was able to successfully complete the 1 mile run, a testament to his strength and grit. Later this year Leo will undergo an autologous stem cell transplant in addition to his high doses of chemotherapy to fight his testicular cancer with brain metastasis. Flunk Cancer feels so honored to have had a Neah, Leo, and their family at the race this weekend to showcase their support.


Neah, her sons, and Flunk Cancer President, John Barry and Board Member, Barb Barry


Our next event is scheduled to be our Annual Flunk Cancer Gala on New Years Eve. More updates to come in the following months as we navigate through the pandemic. In the meantime, our team will be working diligently to create resources for teachers in the classroom and access to clinical trials.

-Flunk Cancer 5k

Leo (left) and Neah (right) 

Flunk Cancer is pleased to announce the first recipient of our Flunk Cancer Giving Program, Neah Farr and her son Leo. Neah has been teaching in the New Hanover County School System since 2004 and currently teaches English as a Second Language at Parsley, Anderson and Carolina Beach Elementary School.

Neah’s son Leo, a 2016 graduate of Laney High School, was diagnosed in September, 2019 with advanced testicular cancer. He underwent chemotherapy treatments late last year. More recently, a brain metastasis was removed in July and, having completed radiation treatments, Leo will soon start high dose chemotherapy and have an autologous stem cell transplant later this year.

Like most young adults his age, when Leo isn’t spending time as a cancer patient, he enjoys skateboarding, dirt biking and online gaming. Leo currently works at Walmart and, in 2019, he completed his automotive technology certification at Cape Fear Community College.

Please join us at the upcoming Flunk Cancer 5K on August 29th where, in addition to the medal ceremonies to recognize race winners, we will also recognize Leo and Neah and present our Giving Program grant.

-Flunk Cancer Giving Grant

Back to School!

Written by Kieran Barry


Yesterday, across North Carolina and much of the United States children returned to school – well… only kind of … 


Yes, they sat at a desk and went over icebreakers with their classmates. Yes, they went over class expectations and etiquette. But were these kids in the classroom? Only virtually. 


Yesterday marked the first day of a new program called The Learning Center at Chapel Hill Gymnastics where I coach. As my first day as a “learning coach” (or tutor if you will), I found myself overwhelmed at the school experience these children are missing out on. They didn’t get to meet their teacher in person. They didn’t get to hug their school friends they haven’t seen in months or meet a new student who may become a lifelong best friend. They didn’t get to play outside at recess, turning the playground into a pirate ship with their imagination or seeing who could swing the highest on the swingset. These memories are embedded in every adult when they think of school. What will these kids remember? 


For some children, yesterday, it became clear how overwhelming virtual learning can be, especially those in Kindergarten, First, and Second Grade who are still mastering reading let alone navigating between Zoom classes and Seesaw or Google Classroom to complete assignments. Connecting to Zoom classes became scary for some as they hadn’t yet met their teacher and were unsure of whether they were connected to the right class as a result. Meanwhile, teachers are attempting to learn the names of their students via a computer screen while establishing trust and meaningful relationships. Humans crave connection – perhaps that’s why we have yet to truly slow the virus down – and while technology enables us to

First-year teacher Jillian May welcomes her students to a drive through Open House prior to the first day of school!

achieve greatness, it does not replace human interaction. Attending school provides vital social interaction for children and these times leave everyone longing for normalcy. 


Teachers are superheroes and while that has always been true, there has never been a time in which it has been more evident. Despite pivoting to virtual learning with extremely little warning, teachers are creating virtual and interactive educational experiences for their students. As teachers continue to persevere through this uncertainty, Flunk Cancer remains committed to supporting teachers and their families battling cancer as best as can. While remote learning offers increased opportunities for immunocompromised teachers to continue to work while maintaining proper social distancing, it offers its own set of unique challenges. We want to continue supporting teachers as best we can by bringing greater awareness and helping to connect teachers battling cancer with ongoing clinical trials. 


In our last blog (found below), we highlighted the importance of mental health, especially in times of high stress. During these next few weeks of distant learning where both students and teachers are figuring out the best educational strategies for virtual class, stress will certainly take a toll on everyone. Make sure to continue taking care of yourself and those around you. In the meantime, grab your loved ones and hug them close, especially teachers and students as they navigate through virtual learning.

-Back to School!

Mental Health Awareness

co-written by Shelby and Kieran Barry


Over the past few weeks state and local governments have been making arrangements for completely remote or hybrid learning in schools this fall. With little direction teachers have been left scrambling to develop adequate curriculums, lesson plans, and methods to remain engaged with their students. For teachers in certain counties, these plans include preparations to maintain social distancing in person – creating hand sanitizing stations with PVC pipe, attaching plexi-glass to desks, rearranging their classrooms.


Given the uncertainty of school this fall for many teachers, students, and families it is expected that additionalstress will be placed on individuals, schools systems, and families. Prior to the Coronavirus pandemic, Mental Health America (MHA) estimated that more than 10 million Americans have an unmet need for mental health treatment, a number that has continually increased since 2011. Furthermore, MHA estimates that roughly one-third of cancer patients treated in a hospital have common mental health conditions. Additionally, rates of depression are nearly three times higher for cancer patients than the average American.


With anxiety levels rising it is critical to take time to attempt to decrease stress levels. In fact, perhaps there has never been a time more critical for people to focus on their mental health, especially teachers and cancer patients.


Exercise has consistently been cited as a great way to alleviate stress levels and anxiety. In particular, aerobic exercise, such as running, has been shown to decrease anxiety levels due to increased blood-circulation, endorphins, and physiologic reactivity. Furthermore, exercise has been shown to ultimately increase self-esteem and cognitive function. Just 30 minutes a day for 3 days a week can start to bring added mental health benefits. 


As for Flunk Cancer, running has played an integral part in our story. Our President and Shannon’s father, John Barry, ran competitively in high school, winning multiple state championships. Although not competitively, Shannon also thoroughly enjoyed running. Even on days where she felt less motivated she would simply say “It’s days like these that make you stronger,” something our dad would always tell us when we were struggling in a workout. This phrase began to encompass more than just running but rather our journey, where struggle became strength. 


On August 29th Flunk Cancer is hosting its inaugural Flunk Cancer 5K in Wilmington, North Carolina. In conjunction with our partner, Go Time, we are taking precautions to ensure a socially distanced race – waved start times, a wider starting line, and etcetera. Additionally, we are offering a virtual run from home option to further encourage social distancing. 

A great mantra to keep in mind is “you’re only one workout away from a good mood.” Exercise and running can be excellent ways to positively impact your mental health. At Flunk Cancer, we know that there is so much that goes into both being a teacher and being a cancer patient or caregiver. During this pandemic and the beginning of the new school year, our hope is that you turn your struggles into strength and pay attention to your mental health.


We hope you will consider joining us for this 5k either virtually or in person, whichever option fits your comfort level. If you would like to sign up please visit If you or a loved one would like more information on finding help for mental health, please visit



Mental Health America. 2020. Cancer and Mental Health.

Mental Health America. 2020. The State of Mental In Health.

Sharma, A., Madaan, V., & Petty, F. D. (2006). Exercise for mental health. Primary care companion to the Journal of clinical psychiatry, 8(2), 106.

-Mental Health Awareness

Glioblastoma Awareness Day 2020


This week’s blog details the journey of Flunk Cancer’s inspiration, Shannon McHone. With tomorrow being Glioblastoma Awareness Day, we found it fitting to share our personal story through an article written by our President and Shannon’s father, John Barry. The article was featured in the Journal of Clinical Research Best Practices last August and emphasizes the importance of clinical trials in a cancer patient’s course of treatment. 


Shannon’s Story

I’ve always considered myself fortunate to have stumbled into the CRO industry when I joined PPD back in 1992. Even after 27 years, I still think myself fortunate to be part of this incredible R&D ecosystem. Like most professionals, my journey has taken me in and out of different organizations along the way. In 2010, I found myself back at PPD after a two-year stint at Quintiles. I’ll never forget the call my wife and I received from my daughter, Shannon, then a 23-year-old wife and mother of a 2-year-old son, Landen. At the time, she was living in Snow Hill, NC, a two-hour drive from our home in Wilmington, NC but very close to her 18-year-old sister, Shelby, a freshman at East Carolina University. 


On the call, Shannon told us that she had mentioned to her GP that she was having some memory lapses and fatigue. She was sometimes unable to collect her thoughts and occasionally had slurred speech. Her physician thought it was nothing, chalking it up to the pressures and sleepless nights of new motherhood, but to be safe, scheduled her for an MRI. The MRI had been performed earlier that day and a follow-up visit scheduled for two weeks later. Shannon was calling to let us know that, before she even got home from the MRI, her physician was calling to tell her she needed to see her first thing the next day. Shannon wanted to know what this call might mean. All we could offer was that she was about to get some really bad news. 


My wife, Barb, a Duke-trained nurse practitioner, and I were unable to clear our schedule for Shannon’s appointment the next morning, so we called her sister Shelby and told her to clear her class schedule and go to the doctor with Shannon. All we could offer Shelby was that Shannon was likely about to get some bad news and that she needed to be there with her for support. We all anxiously awaited the visit, set for 8 a.m. the next day. I was on a conference call when texts from Shelby started coming in. Shannon had a tumor about the size of two golf balls at the back of her right frontal lobe.


Shannon (at left) with her family

Despite the worst-case scenario planning my wife and I had done the night before, I was stunned. I was no longer an executive; I was a father in desperate need of direction, so I do the only thing I could think of: send an email to PPD’s CEO, Dr. Fred Eshelman. Prior to PPD, he had been an accomplished clinical researcher at GSK. He was well known in R&D and medical circles and I hoped he might give me some advice. He quickly replied and asked for a few minutes to make some calls. Within minutes, Dr. Ernie Mario, PPD’s Chairman of the Board, walked into my office at PPD with Dr. Alan Friedman, Duke’s Chief of Neurosurgery, on the phone. As it turned out, Dr. Mario had been on Duke’s Board of Trustees. After a quick chat, Dr. Friedman was set to see Shannon that next Monday morning.


It’s not lost on me how lucky I was that I was able to make that call to Dr. Eshelman, that I had someone in my network who had those connections and that I could call. At the time, I wasn’t thinking about all the people who find themselves in a similar situation but can’t make that call and, just as important, wouldn’t get that answer. I don’t know how other dads, who have their own Shannon, would be able to navigate this complicated ecosystem of ours. I just knew that, within four days of hearing the news, Shannon would be in the hands of a preeminent surgeon at one of the world’s leading brain cancer centers, and that was all that mattered to me.


2010 was a tough year. Shannon had a craniotomy in early March and spent the next six months recovering her left-side motor skills. Dr. Friedman explained that they were able to resect most of the tumor but, as it was an infiltrative tumor, he was not able to get the whole thing without causing permanent damage. Shannon had a 70% chance that the tumor would come back and, if it did, there was a 50% chance the tumor would advance in grade, so a 35% chance the tumor would become malignant. As a grade 2 glioma, any progression would likely be very slow. We learned that gliomas are not uncommon but that they usually occur later in life and cause few problems before the patient dies from other causes. The gliomas are then discovered on autopsy. We considered our odds pretty good and settled back into a normal life.


In late 2014, almost five years after Shannon’s original diagnosis, she returned for routine follow-up MRIs. She had remained asymptomatic, so we were expecting good news. It was her chance to restart her life as “cancer free.” To our distress, her tumor had started to regrow. A biopsy the next week confirmed it has also progressed to a high-grade glioma (grade III). She now officially had cancer and, in addition to a second craniotomy, she would also need standard-of-care treatment: radiation and a decades-old chemotherapy drug, Temodar. 


By this point, my career had taken me to Merck, so imagine my surprise when I learned that Temodar was a Merck product. Also imagine my frustration that Merck’s most promising new drug, Keytruda, was years away from consideration as a brain cancer treatment. 


I started looking for clinical trials, particularly with the new wave of immunotherapies in development, and found limited effective options. R&D companies need to make decisions about which tumors to investigate and when. While brain cancers make the list, high-grade gliomas that aren’t yet glioblastoma (GBM) have few clinical study options. Companies like Merck typically start by targeting cancers like metastatic melanoma that are aggressively lethal to gain approval. They then use these results and commercial returns to help inform and fund trials for other cancers on their list. Common cancers like lung, breast and colorectal usually have higher priority than brain cancer. Professionally, I understood this but, personally, I struggled with the reality that Shannon would have to depend on a standard of care treatment that was not considered curative until a new treatment became available. It’s an industry dilemma that we need to put these patients on treatments we know will likely fail while promising new agents are being tested on other diseases. 


GBM options are now becoming available. For example, UNC Chapel Hill currently has a GBM first-line treatment study that includes a triple-combination therapy of standard of care, an innovative plasmid technology, and immunotherapy. That’s a trial we would have jumped on in 2015, but we had to settle for standard of care. 


After a quick family trip to Disney World over Christmas, Shannon had her surgery at Duke, and started six weeks of concurrent Temodar and radiation therapy, followed by seven months of Temodar alone. I was fortunate to have access to oncologists at Merck who knew everything about the compound. I could share my fears and concerns with them, ask them about possible side effects, and dive deeper into the specifics of treatment efficacy. We knew that Shannon’s treatment would not be curative, but at this point, our job was to keep her alive until a cure did become available. We believed that her cure had already been discovered and it was just a matter of keeping her here until we could get it for her.


If 2010 had been a hard year, 2015 was even harder. Aside from the short period it took to regain her motor function back in 2010 — which seemed long at the time — Shannon had been largely asymptomatic up to 2015. She had never looked like a cancer patient. Now she had the hair loss, fatigue, nausea, vomiting and a nasty lower GI infection brought on by the indiscriminate immune suppression. Her son, now 7, became aware that his mother had a horrible disease and began to worry about her future. He had to grow up fast. 


For most of 2015, I was traveling back and forth between Pennsylvania and North Carolina, trying to be both the patriarch of my family and an executive for Merck. Fortunately, Shannon’s husband, Charlie, was there for her to lean on.


In late 2015, as expected, Shannon went into remission. Her remission lasted a little over a year. She then progressed again in the spring of 2017. This time though, as she had failed standard of care, I was optimistic she might finally qualify for one of the more promising treatments now in clinical trials. This was good news until her biopsy revealed a new tumor: grade III anaplastic astrocytoma (AA), a less common form (7%) of brain cancers. 


While a number of trials were targeting GBM, only two were actively recruiting for grade III AA. One trial was being conducted by Orbus Therapeutics out of Palo Alto; the second was being conducted by Tocagen. As it turned out, Duke was a participating center on the Orbus trial, so Shannon could enroll straight away. Imagine my surprise when I learned that Dr. Mario, PPD’s Chairman, was also the Chairman of the Board of Orbus. It’s a small and interconnected world. 


The open-label Orbus trial was investigating eflornithine against lomustine, a standard-ofcare drug more commonly used outside the United States. As an open-label trial with 1:1 randomization, we knew Shannon had a 50:50 chance of randomizing into the active treatment arm, so it was with some disappointment that we learned Shannon randomized into the control arm, a standard of care that may not actually have been as good as the standard of care she had already failed. As a clinical research professional, I am proud of the work we do. I know the data from control arms is every bit as important as data from active arms, but as a dad, I must admit I was disappointed. 


I explained to Shannon that, all along, we’d been lucky. While it might have seemed like, if she could get a bad diagnosis, she got a bad diagnosis, she had also had the mildest symptoms possible for each diagnosis. She’d had a terrific life throughout this journey. We’d celebrated birthdays, holidays and special events. She was young, otherwise healthy, full of energy, and had a loving family to support her. She was a perfect trial candidate and I asked her to be true to the clinical research paradigm, to be true to the work we do, and enroll into the control arm. I let her know she’d be watched carefully and that we could always tap her out at any time. True to form, Shannon enrolled into the control arm and, six months later, completed the trial and again went into remission. Nevertheless, I’ll always wonder whether enrolling in that trial was the best decision for Shannon.


At this point, I knew there was a strong probability that Shannon would soon progress again, so I started looking for a job that would take me back to North Carolina. I was lucky to find a role as the Chief Operating Officer of Pharm-Olam, a mid-size CRO with operations  headquarters in Research Triangle Park, NC. After joining, I was surprised to learn that Pharm-Olam was the CRO running the trial on behalf of Orbus. It was humbling to know that my daughter was a trial patient in our system and her data was in our database. It’s a revelation that rebalanced me, as I now knew one of those anonymous subjects we study.


In July 2018, Shannon had progressed again. This time, though, we learned of the progression after she had had two significant seizures on July 4th , which prevented her and Charlie from joining us at a family wedding in Syracuse. Landen was with me, Barb and the family in Syracuse. It was difficult to keep the news from him, but we did. 


Soon after the wedding, we returned to Raleigh to meet with the Duke team. The night before our appointment, we met Shannon and Charlie for a quick dinner at a local restaurant to let Landen know what was happening. Even at the young age of 10, he knew that a seizure was an ominous sign and, when he learned that his mom had had two seizures just four days earlier, his heart sank. We’ll all be haunted by the sadness that overcame him that night. It was the first time he fully realized his mother was now fighting for her life. 


Initially, there was some confusion at Duke over whether Shannon had actually progressed to GBM. While her MRI revealed significant tumor growth, Dr. Friedman looked at her and told us he did not think she had glioblastoma. She simply did not “look like a glioblastoma patient.” His comments reminded us that, except for 2015, Shannon had never “looked” like a cancer patient. Dr. Friedman was pretty certain she did not have GBM and recommended a third craniotomy. Clinical care and clinical research now came into conflict: If Shannon had GBM, surgery would eliminate her most promising option, Duke’s poliovirus trial, a vaccine featured on 60 Minutes back in 2015.


If Shannon still had AA, surgery would eliminate an Agios trial that was still recruiting for grade III AA patients, a trial that would require surgery but not until after four weeks of treatment. Both the GBM and AA trials required the presence of tumor mass, so surgery would take both trials off the table. We were fortunate to be aware of the options as we discussed next steps with the Duke team. Dr. Friedman wanted to minimize the number of invasive procedures that needed to be performed by performing one surgery to both resect and biopsy the tumor. His focus was on clinical care. After a couple of days and another MRI, he agreed to do just the biopsy first. We’re grateful that Dr. Friedman was willing to listen and change course. This experience reminded us all that, in the end, it’s still the patient, with support from her family, who has control of her journey.


As we waited for the biopsy and its results, minutes felt like days. We appreciated Dr. Friedman’s experience, but his assessment, while based on decades of experience, conflicted with the rapid tumor growth rate. There was an upper limit to the tumor size for Duke’s poliovirus trial, and we were concerned Shannon would “size out” of this study. 


Shannon finally had her biopsy and, later that afternoon, Dr. Friedman came into her room with the initial results. He opened with an apology, as her tumor pathology did, in fact, suggest Shannon had transformed from glioma into GBM. She still did not look like a glioblastoma patient to him. The GBM bad news was offset by the good news that Shannon was now eligible for Duke’s poliovirus vaccine, one of the most promising experimental treatments available. Shannon’s tumor had grown from 2.7 cm to 4 cm and counting, so we were concerned she would soon exceed the 5.5 cm cutoff for the trial. 


The logistics over the following days were herculean, as the calendars for over 18 medical professionals had to be coordinated. For the first patients enrolled in the study, this coordination took around 30 days, but they had been able to shrink that down to 10 to 12 days. The trial involved three different experimental procedures: the intra-tumoral delivery, the vaccine, and the contrast dye to image the vaccine after it was applied. 


The consent form was nearly 30 pages long. From the perspective of the patient, it was an ominous document. There were questions like, “If you die, will you donate your brain to science?” It’s tough to sit there and walk through these questions with your daughter. Nevertheless, Shannon signed the informed consent. The study-entry MRI found Shannon’s tumor was now 4.9 cm, so she had qualified with only a few days to spare and no room for delay.


It was now the day of the infusion. The treatment catheter had been inserted into Shannon’s brain. The study nurse walked into the room with the infusion solution. We were less than 30 minutes away from the start of the six-hour infusion when Shannon had a 3.5- minute seizure that might qualify as an exacerbation of symptoms, an exclusion for the trial. 


The study nurse packed up the infusion solution and started to walk out of the room. Charlie leaped into her path, yelling, “This is her life! Don’t take it away from her!” He literally blocked the door to prevent her from leaving. 


I understood, scientifically, why Shannon’s pre-treatment condition was important, but as a dad, I knew we were running out of options. After much discussion, the Duke team concluded that, while it was a long seizure, she never lost consciousness, so it wasn’t more significant than her previous seizures and would not be considered an exacerbation. They proceeded with the infusion. 


The procedure was like a biopsy, so Shannon was able to go home the next day. The side effects were minimal; this was not like classic chemotherapy where the patient is up all night vomiting. On the other hand, there was no way to tell if the treatment was working so, for four weeks, we waited.


One morning in the first week of September, we went back to Duke for an MRI. That afternoon, the Duke team came into the exam room. They couldn’t contain their excitement. Casey, the nurse practitioner, put the MRI up on the screen. All the layperson needs to know about cancer MRIs is that black is good and white is bad. There were huge black holes in Shannon’s tumor. There was far more black than white. The tumor was dying. I remember walking back to the car and Charlie saying, “For the first time in nine years, I feel like I’m going to have my wife back.” After nine years, I felt like I was going to have my daughter back. 


The week eight MRI showed almost no change from week four. Then, in early December 2018, we went back for the week 12 MRI. The news was devastating: Not only had she progressed, but the cancer had now spread to the leptomeningeal membrane around her brainstem, giving her less than six months to live. Leptomeningeal disease (LMD) was exclusionary in almost every brain cancer trial. Compassionate use immunotherapy for LMD was not an option because of the high risk of a lethal side effect. We were devastated that we were left with carboplatin and Avastin as Shannon’s only treatment option. 


We were out of options at Duke, so we began looking for other possibilities. Once again, I reached out to my network, this time to Dr. Roy Baynes, Senior VP of Global Clinical Development at Merck. Dr. Baynes put me in touch with several oncologists at Merck. I learned that LMD is an end-stage progression more commonly found in breast cancer patients. Because of the advances we’ve made in treating breast cancer, these patients now live long enough to get LMD. It’s less common in GBM patients, likely because patients don’t live long enough to get it. Most of the LMD trials I found required a specific primary tumor type, in most cases breast., an important source of information for me over the previous nine years, remained difficult to navigate but, with Merck’s help, I found an investigator-initiated trial at Johns Hopkins (JHU) for LMD disease that did not mandate a specific primary tumor type. The Merck team put me in touch with the JHU team, and Shannon’s results were evaluated by the JHU tumor board.


Shannon’s options were closing in. The JHU trial required an LMD lesion of at least 2 mm, which Shannon didn’t yet have. Alternatively, she could have had a spinal tap to see if cancer cells were present, but her Avastin use precluded that procedure. At the same time, she also needed to maintain a strong mental and physical cognition score. In other words, to get into the JHU trial, Shannon’s condition had to deteriorate, but only in one particular way. This brings me to today, in March 2019, when we are waiting for disease progression but without a deterioration of symptoms. Could Shannon thread one more needle?


In January 2019, Scientific American published an article noting that most oncology trials fail because of a lack of patients. It also noted that almost 75% of oncology patients are never given the option to participate in a clinical trial. The patients and the trials are out there but it is no easy matter for many patients to find the right studies, even with expert and dogged support.


In our journey, we have had the good fortune to have access to people like Drs. Eshelman, Mario, Friedman and Baynes, and the countless others who have supported us through Shannon’s clinical journey. We will forever be grateful for their help. Knowing they were there for us gave my family the confidence that, if an option was out there, we would find it. Every treatment option was more complicated than presented here, but we knew we were doing all we could do to keep Shannon alive, mostly healthy, and in good spirits. The journey has been almost unbearable, but it could have been much worse.


As we near the end of Shannon’s journey, I am left thinking about less fortunate patients and families who live their story with fear instead of hope, with despair instead of optimism. 


As an industry, we can do better. We must do better. To our patients and their families, a clinical trial is more than tests, procedures and data. To them, it also gives them hope that their dark passage will eventually emerge into the light. I think we would all agree that, regardless of the final outcome, living with hope is a much better way to live. 


So, was Shannon able to thread one more needle? Sadly, no. After a valiant nine-year battle, Shannon McHone passed away peacefully on April 11, 2019, at the age of 32. She left behind a loving husband, Charlie, an 11-year-old son, Landen, and countless others who journeyed with her or were otherwise touched by the story I share with you today. She will never be forgotten.



-Shannon’s Story by John Barry, her father

School’s Out – Sweet Summertime

by Kieran Barry

Hallways are quiet. Classrooms are empty. Backpacks are hung up at home. It’s summertime. For teachers, summer brings a few months of relaxation and a much needed break and perfect opportunity for vacation.

The month of July is UV Safety Awareness Month. With our Flunk Cancer home-base being in Wilmington next to the beautiful North Carolina coastline, thousands of people flock to our local beaches for a nice getaway and some fun in the sun. But sometimes, without proper sun safety, the fun is simply too much for one’s skin.


The CDC recognizes Skin Cancer as the most commonly diagnosed cancer, despite the major preventative measures that can be taken. Cases of Skin Cancer have also increased significantly since the turn of the 21st century; in 2000 the number of reported cases totaled 44,121 whereas in 2017 over 85,000 new cases were reported. 


In as little as fifteen minutes your skin can suffer damage from sun exposure. Before going to spend time outside it’s important to check the UV Index that indicates the amount of radiation from the sun that you’ll be exposed to and help determine the amount of sun safety precautions to take. 


To help remember the sun safety measures this UV Safety Month and the rest of the summer, we have created the acronym, S.H.A.D.E., which stands for Shade, Hats, Apply, Dress, and Eyes, and encompasses the CDC guidelines to sun protection. The importance of these measures are as follows: 


Shade – It is important to cover oneself in the shade prior to when you feel necessary. It is likely that if you wait too long to find shade, skin damage has already occurred.


Hats – Hats with brims help to protect one’s face, providing further shade from the sun’s rays. Even thicker hats, such as baseball hats, however, leave vulnerable areas unprotected. It is still important to protect your ears and the back of your neck while wearing certain types of hats! 


Apply – Sunscreen with a minimum SPF of 15 offers immense protection from the sun and is particularly important while at the beach and there is maximum exposure to the sun. It is also important to note that one sunscreen application does not last forever so it is important to remember to reapply while spending a lengthy amount of time out in the sun. 


Dress – Obviously at the beach, it is unlikely that one will be wearing pants and long sleeves. However, wearing a coverup to the beach can be extremely helpful to decreasing sun exposure. Additionally, wearing dark colors often give more protection than light colors. 


Eyes –  One of the most sensitive areas on the body are the eyes. Wearing sunglasses offers your eyes further coverage from the sun and eases eye strain from light. 


With July well underway, it’s particularly important to remember S.H.A.D.E. while spending time outside. Happy Summer! 



Centers for Disease Control and Prevention. 2020. Melanoma of the Skin Statistics.

Centers for Disease Control and Prevention. 2020. Sun Safety.


-School’s Out – Sweet Summertime

Men’s Health Week 2020

by Kieran Barry


According to the American Cancer Society, prostate cancer is the second leading cause of cancer death in American men, second in line only to lung cancer. This week, the American Cancer Society celebrates Men’s Health Week, encouraging men to get screened, become aware of any genetic predispositions, and practice healthy habits.


Dr. Jim Wortman, an Assistant Superintendent in St. Mary’s, Pennsylvania, is one of the 1 in 9 men that are diagnosed with prostate cancer in their lifetimes. Dr. Wortman has served in the education sector for years, completing his Doctorate of Education and Educational Leadership in 2017, teaching as an Adjunct Professor at Gannon University and serving as a Pennsylvania Inspired Leadership Facilitator in addition to his position in the central office. To honor Men’s Health Week this year, we interviewed Dr. Wortman to discuss cancer, treatment, and finding support within the workplace. 


When asked about the biggest challenge presented to teachers and administrators battling cancer, Wortman responded “The education profession has a ‘serving others’ focus. Inevitably, a cancer diagnosis requires one to ‘focus inward’ to a much greater degree than is typical and comfortable. So questions arise as to how to balance this need to focus on yourself AND, at the same time, be effective with all that is required of an education professional.” This need to focus inward causes teachers to rely heavily on their support systems. Despite the differences between each school community, it is imperative that every community surround their teachers in need so that their valuable lessons continue to be taught to each student. 


While teachers battling cancer must change their serving mentality to one more inwardly focused, their journey leaves lasting impacts on their teaching philosophy. Dr. Wortman says that personal experiences with cancer affect life’s messages and lessons, whether they be what you get or what you are giving. He stated “The intensity increases on both accounts. You see, feel, hear, and listen better as a result of having to face potential life limitations and loss with so many things you can easily take for granted.” This life experience alters the message teachers give, offering their students lessons about more than just math and science. Further, these teacher’s personal experiences enable them to connect on a deeper level with their students as time in the classroom becomes increasingly cherished. 


To part, Dr. Wortman left us with his words of advice to take into our everyday lives. He said, “It’s okay to lean on family and friends and to own your own vulnerability. The world is full of kind, caring, and giving individuals just looking for a way to help. But, you have to come to terms with BEING helped. We’ll all take a turn at giving and receiving. Be prepared for both.” This lesson is important for both teachers battling cancer and their students. Sometimes, during these tough times, it’s the teachers that receive lessons rather than the students – lessons of vulnerability, lessons of grace, and lessons of precious time. 


Thank you, Dr. Jim Wortman, for offering an inside perspective of the intersection between cancer and education and for your years of serving students and teachers!

-Men’s Health Week 2020

New Normal

Hidden smiles from fabric masks in the grocery stores. Staying six feet away from your friend you haven’t seen in ages. Teachers attempting to cultivate a virtual environment conducive to learning, lacking the ability to give their students a high-5 or a sticker for a job well-done. With most states and countries across the world gradually reopening their economies in light of the Coronavirus pandemic, global citizens are left to wonder what will be the “new normal.” 

For cancer patients across the world, however, this “new normal” doesn’t feel all that different. In fact, active cancer patients and survivors often take many of these same precautions. While fighting cancer, the immune system becomes extremely vulnerable to outside pathogens, especially viruses. Even the common cold can present extreme complications and infections for cancer patients.  

For teachers with cancer there is an inherent risk reporting to work as children are often more susceptible to illness given vast spread due to lack of precautionary measures such as hand-washing and disinfectant. Each school day, these teachers risk their health in an effort to provide their students with stability and a lasting education. 

The social distancing measures being taken as a response to the coronavirus work to protect the immunosuppressed, including cancer patients of all types. Both the cancer and the coronavirus have no boundaries, affecting citizens worldwide. It takes a collective effort to develop vaccines, immunotherapies, and treatments to combat these illnesses. 

Perhaps, then, this “new normal” will bring about more precautions to protect against the spread of viruses, while in turn providing cancer patients with greater safety in their communities through greater precautions. For teachers with cancer, perhaps this “new normal” will benefit their future teachings, enabling them to have a greater virtual impact on their students through the learning curve from the COVID-19 pandemic. Ultimately, perhaps it’s possible that the coronavirus outbreak will teach people the importance of unity in the face of national and global illness. 

During these unprecedented times, Flunk Cancer remains committed to supporting teachers and their families afflicted with cancer. Committed to advocating for teachers to receive higher pay and greater health benefits and facilitating conversations regarding these issues. Committed to connecting these teachers to clinical trials and other resources to ease their journey as they navigate through their new normal. 

We hope that through our support we can enable teachers to remain committed to their goals. Teachers have the ability to inspire the next generation – inspire their students to pursue careers in science and medicine in hopes of finding a cure for cancer as well as protecting against other unknown viruses. Most importantly, we need our teachers to continue to encourage the younger generation to use their voice to create needed change.